Hogging the Pity Vote

"We are discreet sheep; we wait to see how the drove is going, and then go with the drove. We have two opinions: one private, which we are afraid to express; and another one - the one we use - which we force ourselves to wear to please Mrs. Grundy, until habit makes us comfortable in it, and the custom of defending it presently makes us love it, adore it, and forget how pitifully we came by it. Look at it in politics." ~ Mark Twain

It's started already. My esteemed co-workers think Elizabeth Edwards' revelation about her cancer constitutes an attempt to get the pity vote. After I commented that I need to limit how much I think about the subject, they're off and running anyway.

Then they moved on to Tony Snow. I just had to tell them (more than once) that it was making me anxious and depressed to continue that conversation. Finally, I walked away. I came over to my side of the building where, for the moment, I don't have to offer up my opinion "as a cancer survivor" about any of this.

As if the anxiety and depression and fatigue weren't enough, I'm now having colon pain. Thanks, guys, for stressing me out just a little bit more. What the hell. It's important that you express your opinion to me. We all know I can take it, but it might just cause an eensy bit of pain in my stomach. What's the big deal, anyway? I think they should all just talk amongst themselves.

Apparently it hasn't occurred to anyone that I'm still struggling emotionally. Despite the number of hours I'm whiling away at the office and the fact that the girls are sporting a new bra. Even though I regularly (though not always) expend the energy in the morning to actually put on make up. I'm still in free fall. On the inside, I'm still bruised, you assholes. Wake up!

Maybe I'm just being too demanding. Why should anyone get the hint when I tell them I don't want to talk about it anymore? Suddenly the words from an old folk song come to mind, "If I had a hammer, I'd hammer in the morning..." right on the tops of your heads, you inconsiderate lumps of humanity with whom I have to spend my days. Jesus.

I guess I'm just trying to hog some of that pity vote.

When You're Going Through Hell...

"If you're going through hell, keep going," ~ Winston Churchill

Owner of Company is on a rampage. He most definitely does not approve of the Edwards' decision to continue the Presidential campaign. He's been calling me all morning on the intercom, reading his own satires of news stories about them, asking me for synonyms, wanting definitions. He just called me while I'm writing this to tell me that "satire" was, indeed, the word he was looking for, instead of "parody" or "lampoon" or whatever. When Owner of Company gets worked up about something, he can get obsessed. This is a quality we share. I'm just not obsessed about this one.

He thinks that it's really John Edwards' decision to continue the campaign, no matter what his wife wants. I don't know. I don't think that's necessarily the case. Sometimes it's helpful, when you're battling cancer, to just try to get on with daily things. For them, political campaigns are a regular part of their lives. You certainly don't need to be sitting around with nothing to do but think about your diagnosis or how the chemo is making you feel or any of the other wrenching sidetracks you mind creates. Maybe you just campaign, if that's what you do.

Owner of Company thinks John and Elizabeth Edwards should spend their time, however much that is, being with their small children. I have a stepson I first met when he was 7. I don't feel qualified to judge. Owner just told me that they plan to take their children out on the campaign trail with them. I've worked on several political campaigns and they are incredibly grueling, even if you're young and healthy. I'm not sure how much time they'll really have to spend with the kids.

These are very early decisions, though. Those decisions may change as treatment and illness progress. I didn't have stage 4 breast cancer that metastasized to the bone, but early on in treatment, I thought I could maintain my regular schedule. That vision of my future was incorrect. That may be so with Elizabeth Edwards. As I said before, you deal with it however you can.

Everyone has their own way of coping with cancer and with death, I think. I'm reluctant to seem judgmental or be judgmental. It's a tough journey to even get through treatment. I know that when I was first diagnosed, I didn't know where I would find all of the mental, physical and emotional resources I'd have to call upon to endure.

Throughout my own treatment, people felt comfortable suggesting how I might deal with it. Many friends pushed me to confront my feelings about everything that was happening to me. I wasn't hurt or irritated by those suggestions; I didn't have the physical or emotional luxury of being offended. I just plowed through, hanging on until it was over. I know everyone has to find their own way. The path isn't always easy to see.

Owner will be working on emails about this all day. He calls me up and asks me how I feel, as a cancer survivor, about what he has to say. I'm not really the person to ask. I have a predilection for dark humor. I can be very sardonic. What he's saying is fine with me.

But then I don't have Stage 4 breast cancer that's metastasized to my bones. He might need to check back with me should that come to pass. (I'm superstitious about this. I'm knocking on my fiberboard desk.)

The Good News

I'm actually wearing a real bra today. Not my little velcro fastened-in-the-front breast vest thingy. Better yet, you can not tell the difference between the girls. That's right--we've moved on from "breast stump" to just one of the girls.

I'm not sure that this is necessarily good news, but I'm increasing my work schedule to five hours this week. I'll just have to see how close I am to crawling out to my BarneyRubblecar before I make a firm decision for all five days. Ultimately, the body's needs will take precedence over my need to get back to a regular schedule. Even if that means staying longer every day in Crazy Land.

I'm also going to try to start a very low-key yoga practice. I haven't done anything physical since my recent surgery. I think yoga will help me to learn how to stand up straight again. It also adds to my range of motion for my arm. Someday soon, I'll be back to cardio workouts and weight training. That will most certainly not be this month or next month. Soon, though.

Elizabeth Edwards

Regarding Elizabeth Edwards, I saw the Sixty Minutes interview and I'd be lying if I didn't say it made me uneasy. I don't like to think about metastasis or recurrence. Unfortunately, people tend to bring it up fairly regularly, so I don't get to completely put it out of my mind. Watching that interview was a gesture of solidarity; I thought it might be uplifting. It wasn't uplifting.

As for the continuation of the Presidential campaign, we all deal with this however we can. She can deal with it by campaigning and continuing on with her normal life as much as is possible. It seems likely to me that there will be some days (maybe many) when treatment will completely exhaust her ability to cope.

Would I do the same thing? Probably not, simply because I'm not strong enough to push myself forward while undergoing chemotherapy. I wasn't before and there's no reason to believe that I've changed in that regard.

I got an email on Friday from owner of Crazy Company railing against the decision. As for me, judging her or her husband is really none of my business. We deal with cancer (as with all life trauma) however we can, we get through treatment however we can. Sometimes you don't know how you'll cope, but eventually you just do it. Elizabeth Edwards is going to cope by getting on with life.

The End of Chemo Anniversary

"I wanted a perfect ending. Now I've learned, the hard way, that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next." ~ Gilda Radner

I've been catching up with blog friends I haven't been able to read lately. I need to stop for a moment to talk about yesterday. It was a bad, bad day and it took me until late in the afternoon to realize it. Realization should have started when my mom told me a couple of times early in the day to stop beating up on myself.

On the way home, she was talking about the 4th of July and it immediately reminded me that July 6, 2006 was my last day of radiation. Then I recalled that March 28 was my last chemo day. But then I wasn't sure...was it March 26 or March 28? I became obsessed (oh yeah, I never do that ) with verifying the date. Around 7;00 p.m. last night, I finally managed to find some written evidence that the date was correct.

Then it suddenly hit me. A year. As someone on my breast cancer message board told me, I've been through a lot. It made for a sad and somber evening. It's okay...just a part of coming to terms with it all. I allowed myself to grieve for the relinquishment of wholeness. I remembered it all. The diagnosis--in three stages. The mastectomy. The chemo. The radiation. It was all unbearable, so I chose not to bear it.

I haven't only changed physically. I know now, with complete certainty, that I can get through anything. Maybe my father's suicide should have enlightened me on my transcendent abilities. Now I know. It seems to have created a greater reserve in myself, a distancing from the hard events of life. I am invioable.

It seems I've permanently retreated into myself to shield myself against misfortune and pain. That doesn't mean I'm emotionally unreachable; as a matter of fact, I may be more open to love (in a general, nonspecific way) than ever before. I can survive love and loss. That knowledge liberates me, but it leaves me with an openness to love primarily on a non-specific basis. I have good will towards everyone. Close personal relationships seem even more unreachable. If you care about everyone equally, do you really care about no one? I don't think so. I hope not.

How have I changed? How have I changed? It's a question that's rather haunting and not fully answered still. There's a lot more grieving to be done, a lot more suffering to be worked through. I can survive it, though. I can survive anything.

I Don't Care

I used to care how I looked. I mean, really care. If the humidity was high, I devoted untold amounts of time to getting that very annoying little wave out of the top front of my head. It was very stupid looking, especially since the rest of my hair was fine and, though a little wavy, primarily straight. It would bother me all day long. Every time I glanced at myself in a mirror or reflection in a window, I would immediately set to bending my hair into submission. It never really worked.

When I found out that I was going to have to have chemotherapy, the very first thing I thought was, "no hair.' It was traumatic. Everyone kept reassuring me that it would grow back. That didn't exactly make me feel any better. Then there were sores inside my mouth that made it excruciating to eat anything, even frozen yogurt. There were hideous and painful sores on my hands. My personality virtually disappeared into the constant, all-over pain.

After my mastectomy, it was hard to feel good about my body. Harder still with sores, that classic moon face from the steroids, the extra 15 pounds I gained (also from the steroids), and losing absolutely all of the hair on my body. I started to look at myself only from the neck up. On most days, it was tough to even do that. That was okay, though. I needed all of the energy I could muster just to have the will to go on with the treatments.

By the time I got to radiation, I didn't care so much about the hair. I stopped wearing my wig, wore a ball cap for a while (a tasteful pink Phoenix Suns cap) and, after a while, just went bare-headed. I'd gotten some of my hair back by then and I consoled my co-workers (who were a little nervous about how to deal with mostly bald Ggirl) by telling them, "You'll get used to it. I did." I said it cheerfully.

I started to lose weight when I began radiation and got back to my old pre-steroid size. I got a breast prosthesis that didn't surreptitiously migrate up towards my neck when I wasn't looking. My eyebrows came back. My hair came back, darker and curly.

But I just don't care anymore. If my hair isn't looking good, I go with that. It is, after all, hair. It's completely unruly and I'm good with that. I don't wear makeup. Like after my dad's suicide, I just don't have the energy for it. I can come to work, barefaced, or I can stay home with makeup on. I don't care what I wear. I have this post-reconstruction vest-like bra that's impossible to wear with most of my clothes. My breasts aren't yet symmetrical. I don't care.

One of my co-workers came into my office today and told me she thought my hair is cute today, liked my (turquoise) necklace and heart-shaped earrings. I looked at her blankly. Can't you see I don't care anymore? I know people are trying to be nice when they compliment me. They tell me I look pretty. It's a pity compliment, though. I've got breast cancer, but it did not make me stupid. I say thanks, because that's what one is supposed to do when complimented.

I don't think I was a shallow person before. Caring about how I looked was just part of my whole gotta-be-perfect take on the world. I look at myself in the mirror now and wonder where my pre-breast cancer prettiness went. Then I remember that I just don't care.

Dreams of Working Out

I bought three new workout dvds this week. Two of them were Denise Austin videos and one was a yoga video. Oh how it makes me long to get back to working out. Sometimes I even start to believe that, after I leave work, I can go home and at least do some yoga. On my drive home, I always realize I'm not strong enough yet.

I'm still only working three hours a day, at most. I go home and have to lie down for about half an hour or so. That's a new development this week. Usually I just park my butt on the sofa and rest there, but this week has been taking a toll. I get that massive fatigue thing that makes my back, arms and legs ache.

I have been busier this week at work. I answered the phone for a couple of hours one day, since I was the only person here. I've also done some proofreading and updating the database I created. The big energy drain, though, was having to talk with co-workers. That takes enormous energy. I've already spent about an hour this morning, listening to a co-worker. He was funny, but I'm not sure it was humorous enough to justify the energy drain.

One of my colleagues just called to request a database revision. It's good to be needed.